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Symposia

Health Psychology / Behavioral Medicine - Adult

Session: “We’re All in This Together”: How to Best Employ Community Engaged Research in Complex Behavioral Medicine Settings

3 - (SYM 134 Best Practices of Community-based Participatory Online Survey Research Among Transgender Women with Alcohol Problems

Sunday, November 19, 2023
10:30 AM – 12:00 PM PST
Location: Cispus (403), Level 4

Drawing from our complementary expertise as a community-engaged principal investigator and the chair of a community-engaged research council of a federally-funded Center For AIDS Research (CFAR), we will co-present best practice principles in community-engaged research (CER) with real-world exemplars from a community-participatory online survey of (N =118) transgender women of color with histories of alcohol problems. Participants in the online survey were recruited via social media and word-of-mouth to learn about their experiences with alcohol use and recovery. Participants spanned across 29 states, about one-third self-identified as being in recovery from a problem with alcohol or other drug use, and one-third self-reported living with HIV. The online survey was informed by a community advisory board of five transgender women and gender diverse people of color with substance use and recovery lived-experience from Florida, Chicago, and Los Angeles. First, we will demonstrate how to advocate for and build equal partnerships between researchers and community through describing the process of assembling a community advisory board of transgender women and gender diverse people of color from across the U.S. We will demonstrate how community advisory board meetings were structured and highlight key outputs, such as a video consent form used in the online survey. Second, we will show one way in which CER can work towards replacing ‘damage-centered approaches’ with ‘desire-based frameworks’ through showing a community report of survey results sent to survey participants. The report highlights sources of resilience alongside common experiences of discrimination, and includes quotes from a subsample of participants who completed an in-depth interview. Finally, we will talk about imperative ethical contributions of CER in online research by describing how a community advisory board informed procedure for data integrity when the online survey encountered bots. We will highlight key considerations in detecting bots in online research with marginalized populations, and the pros and cons of existing bot detection tools.